協助母親面對唐氏兒的早期療育及心理調適之護理過程

本篇個案報告探討一位唐氏症患者之母親，於初次得知寶寶是唐氏症患者後之心理調適過程。護理期間自90年9月19日至12月6日，運用Henderson護理理論之人類十四項基本需求作為護理評估之導向，藉由觀察、傾聽與會談方式收集資料，察覺個案需求。結果發現個案於門診期間主要的護理問題有：1．哀傷/對女兒的病情及預後不了解 2．照顧者角色緊張／缺乏唐氏症相關知識 3．睡眠型態紊亂／擔憂女兒未來生活情形。在整個護理過程中，藉由個案對壓力事件的真實感受，筆者協助個案在心理方面的調適，並獲得良好的支持系統，使得個案於護理期間有正向的經驗感受，並願意持續的帶著患童進行早期療育，進而提昇其獨立照顧患童之能力，並發患童獨立行動的潛力，這也是整個醫療團隊最希望看到的結果。
The purpose of this study was to discuss the adaptation for the mother when she learned that her baby has Down's syndrome. This study was based on Henderson's Theory. Data were collected by observation, listening, and interview to assess the needs of this study case. During the nursing duration from September 19 to December 6 of 2001 several primary nursing problems have been shown, including grieving and unclear about her daughter's condition, the stress for being a caregiver and the deficit of information related to Down's syndrome, and disturbance in her sleep pattern and worry about her daughter's future. During the process, the case has been under intensive stress and the author has helped the case to adapt herself and benefit from the support system. Afterwards, the case has expressed positive feeling and was willing to take the child to receive an early treatment continually. Her ability of independent self- care was improved and her acting potential for the child was also aroused.